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HR 9228 119th Congress · House

Bill to Expand Fiduciary Access to De-Identified Health Claims Data

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Official title: To amend the Employee Retirement Income Security Act of 1974 to ensure plan fiduciaries have access to de-identified information relating to health claims, and for other purposes.

This bill would amend ERISA, the federal law governing private-sector retirement and many employee benefit plans, so plan fiduciaries can access de-identified health claims information. The goal is to let employers and plan administrators review claims patterns without seeing personal medical identities, which can help them manage benefit costs and design coverage. It would affect workers and retirees in employer-sponsored health plans, as well as the fiduciaries and vendors that administer those plans. The measure is aimed at improving plan oversight while preserving privacy through de-identification.

  • Amends ERISA, the federal law governing private-sector benefit plans.
  • Requires access to de-identified health claims information for plan fiduciaries.
  • Applies to fiduciaries overseeing employer-sponsored health plans.
  • Focuses on plan oversight and benefit administration rather than new benefits or spending.
Public Relevance 35 / 100
Niche Modest scope Broad

If you get health coverage through an employer-sponsored plan, this bill could affect how your plan is managed and monitored. Plan fiduciaries would have clearer access to de-identified claims data, which could improve oversight of costs and benefit design, but it would not directly change your eligibility or guarantee lower premiums. The main effect for most people would be indirect: better plan administration if the data is used well, with privacy concerns depending on how securely the information is handled.

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FOR
  • Employer plan sponsors They want better access to claims trends so they can monitor costs, evaluate plan performance, and negotiate more effectively with insurers and benefit vendors. De-identified data can help them spot waste or inefficiency without handling named medical records.
  • Workers and retirees in large health plans Supporters argue that stronger fiduciary oversight can improve plan quality over time, especially if it helps reduce hidden fees, poor vendor performance, or unnecessary spending that can feed into premiums and out-of-pocket costs.
  • Benefits consultants and plan administrators They may see the bill as a practical modernization of plan management, giving fiduciaries the information needed to make evidence-based decisions while keeping personal identities out of the data set.
AGAINST
  • Privacy advocates They may worry that even de-identified health data can sometimes be re-identified or combined with other information in ways that expose sensitive medical details. Their concern is that broader access can create new privacy and security risks.
  • Some workers and unions They may fear that fiduciaries could use claims patterns to influence plan design in ways that shift costs onto employees, narrow coverage, or pressure people with expensive conditions even if names are removed from the data.
  • Some health data security specialists They may argue that expanding access increases the number of entities handling sensitive claims information, which can raise the risk of misuse, weak safeguards, or data breaches.
  • “ensure plan fiduciaries have access to de-identified information relating to health claims”

    This would give plan decision-makers more visibility into how a health plan is being used and what it costs, while stripping out direct identifiers. In real terms, it is meant to improve oversight without giving fiduciaries a list of named patients.

  • “amend the Employee Retirement Income Security Act of 1974”

    ERISA is the main federal framework for private-sector employee benefit plans. Changing it can alter how employers, plan trustees, and administrators manage health coverage for millions of workers and retirees.

  • “for other purposes”

    This signals that the bill may include related technical or conforming changes beyond the core data-access rule. In legislative practice, that can affect how the new fiduciary access standard is implemented and enforced.

June 9, 2026

Referred to the House Committee on Education and Workforce.

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